Video & Podcasts
Featured
On the “Rare Insights” podcast we bridge the gap between those living with rare diseases and the biopharmaceutical industry.
Journalist Lindsay Guentzel describes navigating a diagnostic odyssey and how she manages day-to-day life with myositis in an impactful webinar.
Rare mom Samantha Deschenes gives us an unfiltered look into life as a parent to a child with refractory seizures.
Join Know Rare in a heartfelt exploration of the profound impact of journaling on the lives of those touched by rare diseases. In the “Know Rare Connect: Journaling Your Journey” webinar.
In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories.