Organization Spotlight: CureGRIN
About the Foundation
CureGRIN was founded in 2018 by parents of children diagnosed with GRIN Disorder (GRIN1, GRIN2A, GRIN2B, and GRIN2D variants) who had a deep desire to help families walking the same journey. In 2021, the Foundation was approached by a family with a child diagnosed with GRIA Disorder who asked if we would consider also including GRIA and GRIK genes. After learning more from clinicians and researchers about how similar the disorders are, they expanded their mandate to include all ionotropic glutamate receptor genes.
Our goal is simple and bold: To find cures and therapies for people around the world suffering from GRI Disorders.
CureGRIN is committed to ensuring collaboration between clinicians, researchers, biotech companies, and patient advocates, sharing everything from theories and results to animal models and technologies.
They follow a three-pronged approach in their effort to find a cure for GRI Disorders:
Drive the research agenda to find treatments and cures by the end of the decade;
Unite and empower the global GRI Community;
Strengthen operations, governance, and revenue to achieve their mission.
Mission Statement
CureGRIN Foundation is dedicated to improving the lives of people worldwide with GRI Disorders (GRIA, GRID, GRIK, and GRIN) and their families through research, education, and support. They work closely with scientists and the medical community to drive patient-centered research that will lead to treatments and cures.
Contact info
Phone: 855.982.9470
Email: Info@curegrin.org
Website: www.curegrin.org
Learn More
Interested in learning more about GRI Disorders? Click here.
They love to share the stories of their amazing kids. Check them out at this link: https://curegrin.org/gri-stories/
They are releasing their 2024 Holiday Gift Guide which includes a pre-order link for their second edition of Stories of GRI. Written by parents, grandparents, siblings and even a GRI Disorder researcher, Stories of GRI reflects a shared journey of pain, love, joy, resilience, and hope. Sign up for their newsletter for updates: https://curegrinfoundation.salsalabs.org/newslettersignup/index.html
They recently launched a global GRI census to collect data from families to advance their search for treatments and cures for GRI Disorders. Check out their November 2024 update!
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