Organization Spotlight: The United Mitochondrial Disease Foundation
About UMDF
For over 25 years, the United Mitochondrial Disease Foundation (UMDF) has worked to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders while supporting affected individuals and families.
Since its inception, UMDF has funded over $14 million in research, making it the leading non-governmental contributor of grants focused solely on mitochondrial disease. UMDF advocacy has helped secure an additional $55 million in federal funding via the Department of Defense and National Institutes of Health.
Last year, more than 7,000 patients or caregivers attended UMDF virtual support meetings, including meetings for specific diseases, regions of the country, age groups, and more – along with webinars like Ask the Mito Doc.
To help educate clinicians on mitochondrial diseases, UMDF features monthly Bench to Bedside clinician seminars, hosts the annual Mitochondrial Medicine Symposium, supports the Mitochondrial Care Network, and educates clinicians on their Mito U platform.
You Are Not Alone on Your Mito Journey
The United Mitochondrial Disease Foundation offers a variety of online resources to support your mito journey.
Here are a few quick links that you may find helpful:
Explore your eligibility for clinical trials using UMDF’s Clinical Trial Finder Tool here.
Attend support meetings and connect with other Mito families here.
Locate a Mito Doc or connect with a Mito specialist here.
Learn how to get involved and support the Mito community here.
Help researchers understand mitochondrial disease by joining mitoSHARE here.
Contact Information
The United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
Phone number: 1-888-317-UMDF (8633)
Email: info@umdf.org
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